|
CONNECTICUT
Zelma Berube - I woke up one Monday morning (1999) with pain
that started on my right arm and went down all the way to my foot,
very sore and stabbing pain. Got worse throughout the day and on my
way home from work stopped by a Walk-in center. While there I
started to have what everyone thought was a stroke.. lost total
control of my right side muscles. That was only the beginning to an
illness that has taken over my life. No one could tell me what I had
and I suffered for close to 6 months without knowing. Doctors did
all kinds of test.. telling me I could have anywhere from a brain
tumor to Lupus. All the tests came back negative except a Lyme titer
that was positive but I was told that I needed to have further
testing to see if I had Lyme. Everything else was negative. By then
all the Doctors I was seeing had given up and I was being told I was
depressed and needed depression medication. I knew that wasn't true
and being that this "Lyme" test was the only light I had.. I went
with it and researched it. I didn't know what Lyme was then but boy
do I know now. I went to see a Lyme Literate Doctor who I say saved
my life! He found that I not only had Lyme disease but a
co-infection of Babesiosis.. He immediately started me on treatment
although unfortunately by then... my Neurological symptoms had
worsen and Lyme was in its Advance stages so it took me close to two
years to feel better. I have continued to have relapses and have
never been myself again. It's now 2006 and I've suffered on and off
and even now I don't have one week that goes by that I can forget I
have this horrible debilitating disease. I'm just thankful that I
didn't give up and kept persistent that something was wrong... until
I found someone that could help me. It has been a long road... and I
know is still not over... it may never be over. But I'll continue to
fight for myself and my family. If what I've learned going through
this would help one person out there then is all worth it!!
* * * * * * * *
Corrine Lewis - Hi Lyme fighters.
My name is Corrine and I live in NW Connecticut and have just tested
positive for Lyme after many tests, ie lyme, heart, respiratory,
carpal tunnel, etc., xrays numerous joints, hearing loss, tinnitus,
and so much more over many years. I am hypothyroid and have blamed
that on most everything. The fatigue is unending. But maybe if I get
this treated I can finally start feeling goooooood! My ND diagnosed
it and wants me to see a LYME LITERATE Dr. ND's cannot prescribe
prescriptions in CT. She referred me to Drs. near Boston and one in
NY. The consult in NY is $700 and of course not covered by
insurance. I'm hoping to hear from some CT. patients that have been
treated by CT. by "Lyme Literate" Drs. and hopefully accept
insurance. Obviously even if I have to pay out of pocket, if I get
this treated, and get healthy, it will be "PRICELESS" no matter what
cost. Feeling miserable for so many years I will pay the price.
Thanks to anyone for info. I appreciate your help and its great to
find sites like this to help find out whatever I can about lyme. I
realize I'm only at the beginning but my ND says within a year I
should be great. Bless all of you.
* * * * * * * * |
|
In
the interest of making the stories palatable for everyone, please
spell-check your submissions, and substitute a word like "antibiotic(s)"
or abx for drug names. This site is foremost about telling the story of our
disease and problems with diagnosis, treatment, etc.
Please refrain from listing every drug and/or dosage you have been
on. We have all been through a unique experience and that is the
focus of this page. Thanks for your understanding and cooperation.
NOTE: If you ask
for help when writing, please provide your email address so
that we can respond! |
