The Faces Of Lyme

These Stories are REAL people
with Lyme disease & coinfections

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For the non-lyme literate: Common Lyme abbreviations: abx=antibiotics  dx=diagnosed/diagnosis

HAWAII

Casey Nonaka
- Aloha- 8 years of pain and doctors telling me to live with the pain, it's stress, fibromyalsia, etc. Finally when I started to throw up in the morning I could not take it anymore so I went back East to get the diagnosis I have know in my heart all along. Had numerous Lymes test that came back negative, until I did the CD-57 suggested by my sister nothing came back unusual. doctors in Hawaii know nothing about Lymes they don't have it here, I got it on a visit back home to Maryland. It's been a long hard road and the healing process has not been easy either. I have been 2 months on antibiotics and had the Herx reaction 2 weeks ago that was really scary. I'm still trying to work part time but that is difficult with the low energy level I have since I have been on the anti-biotics. I have Epstein Barr also since my immune system was so tired. Very low MSH and very high C4A which I am still waiting to find out what that means. If it wasn't for my strong belief in God I would either be dead or addicted to pain killers, my faith has taken me this far and I look forward to feeling myself again, even though I can't remember how that is after all these years. God bless anyone out there and don't give up!!!


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In the interest of making the stories palatable for everyone, please spell-check your submissions, and substitute a word like "antibiotic(s)" or abx for drug names. This site is foremost about telling the story of our disease and problems with diagnosis, treatment, etc. Please refrain from listing every drug and/or dosage you have been on. We have all been through a unique experience and that is the focus of this page. Thanks for your understanding and cooperation.
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