The Faces Of Lyme

These Stories are REAL people
with Lyme disease & coinfections

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"Together We Grow Stronger"


For the non-lyme literate: Common Lyme abbreviations: abx=antibiotics  dx=diagnosed/diagnosis

IDAHO

Karen Hills
- I was bit by a tick in Texas in 1999 and it was diagnosed as a spider bite. Then later as possibly fybromyalgia or Chronic Fatigue Syndrom. No one tested me for lyme as I never saw what bit me but it made a bulls eye rash. I was getting more absent minded as the years past. Three years after the bite I fortunately had a concussion after a total car wreck that lead me to see a Dr and get an MRI. Oh, looked like I had LYME or MS. After seeing a MS specialist in Spokane who was from back East, he told me he thought I had LYME and tested me for it. My tests came back positive! I was given one month of IV antibiotic and told to come back. Well as we Lymies do, I forgot my appointment and that I was supposed to go back! I continued to get worse and while visiting relatives again in Texas I went back to the DR there and told them they needed to start testing their patients for LYME to determine the type of bite instead of just guessing it was a spider! While there I searched the net and found a Lyme net sight and emailed the contact in Houston. We talked by phone and she sent me many resources and referral names and recommendations. Dr. C in MO was one who stood out for me as being very interested in researching this disease and learning and teaching others about it. I made an appointment and flew to see him in Feb. 2006, By this time, I had short term memory problems and my body did not feel interested in doing any activities and aches seemed to travel around and vary in degree of discomfort and downright PAIN. After 6 months on the supplements he suggested as well as 6 months of various antibiotics, I am now interested in life again. I enjoy my gardening, going out to lunch with the gals, palates, exercise, golf and I am interested in painting again! I told the Dr. in a recent follow up that I felt like I had my body back again and now needed to get back my mind! I still have short term memory loss that result in my having to ask others for help often and for patience when I keep forgetting my appointments. I do HIGHLY recommend my Dr. Before he treated me, I felt like I had just dropped through the cracks of the medical society and had almost given up living like my old self again. Now, I have HOPE again and can see and feel the difference in only 6 months. I urge all others with possible Lyme to keep researching on their own and check out experiences shared on the Lyme net. I also recommend the treatment I have received. It is working great so far!


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In the interest of making the stories palatable for everyone, please spell-check your submissions, and substitute a word like "antibiotic(s)" or abx for drug names. This site is foremost about telling the story of our disease and problems with diagnosis, treatment, etc. Please refrain from listing every drug and/or dosage you have been on. We have all been through a unique experience and that is the focus of this page. Thanks for your understanding and cooperation.
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