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INDIANA
Crissy Cardone - To make my long and painful story short, I was
tested and diagnosed as having Lyme disease by my family doctor in
1994 following a tick bite that resulted in an ECM rahs on my foot.
I was not properly treated at that time for this serious, soon to
become generalized Neurological spirochetal infection. I was
retested for Lyme disease in 2002 by a VERY Lyme literate medical
doctor, while under her care for a likely related neurological
disorder. Again, appropriate tests were ordered that positively
affirmed the active presence of this disease. Again, I was not able
to get the proper treatment due to insurance barriers. My case of
Lyme is considered to be chronic, late stage and/or tertiary
neurolyme also known as neuroborreliosis. In is now 2007, and I
continue to battle this disease on a daily basis. It can sometimes
be very difficult for people who don't know much about Lyme to
understand the amount of pain, or the severity of the symptoms that
a patient with Lyme disease can experience. My health has steadily
deteriorated over the years. I have experienced, and still do
continue to fight virtually all of the symptoms, and the devastating
effects of this disease. I am in constant chronic pain, my memory is
pretty much gone, and I have "lost" the life that I once had. As a
wife and mother of four...this is not the way I want to live the
rest of my life that I do have left. I started a non-profit Lyme
awareness/support group for those in Indiana, as after moving here
from the Pennsylvania area, I was unable to find any type of support
system. I thought I was "alone" here. I know there are other
suffering, and I never want anyone to think that they have to do
this alone.
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