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MICHIGAN
Christy Banfant - My husband was diagnosed with Lyme in Feb
2008. About 3-4 years ago his feet swelled up and turned purple. Doc
gave him steroids and within a few weeks it went away. His hearing
was bad, dry cough. In March and Feb. of 2007 he experienced a few
days of burry vision it would come and go. Eye doctor and PCP could
not find anything. In July 2007 it never left. He is off balance, he
has nystagmus (jerky eyes) and foggy head. He said it feels like his
head is full of water. His LLMD did a clinical diagnosis based on
his symptoms. My husband is a big hunter and works outside. He is
now on Malarone, Zithromax and one other antibiotic. He has some
good days but for the most part we know this will be a long road.
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Tammie Hayley - I have been experiencing strange symptoms for
years such as my body locking getting lost emotional breakdowns
which I thought or I was told I was bipolar until about five years
ago I was diagnosed with endometriosis after five laparoscopys I was
told the only thing that would help was a hysterectomy after that
next year I started having stabbing burning pains in my lower back I
went to a orthopedic surgeon he thought I was crazy and sent me to a
psychologist after three different orthopedic surgeons I had
cortisone injections had a bladder suspension numerous trips to the
ER exhaustion confusion then neurologic symptoms like ms went to a
neurologist and was told i had fibromyalgia went online to look it
up and came across Lyme disease decided to get tested and came back
positive in horrific pain in my back numbness anything you can think
of I've had it so now after years of symptoms I am going to a LLMD
and I start a picc line this week.
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Susan King - Lyme took over my life in 6 months. It began one
winter morning with a sore throat that never left. I went to 9
doctors and 7 dentists because my mouth symptoms increased. Sore
tongue, sore teeth, even after extractions, sore gums, burning TMJ,
neck creaks and cracks and I couldn't turn my head. I had 2 negative
Western Blots at the local hospital. Since they were both negative
no one would treat me when I said I thought I might have Lyme. It
began one winter morning in early December, 2005. One Sunday night,
at the end of deer hunting season I flew on a plane with a group of
deer hunters who had been in Northern Wisconsin. They were still in
their hunting clothes and were filthy. The next morning I woke up
with a large bite on my hand - thought it was a spider bite. I got
sick one month later. I ended up having a very positive Western Blot
test through IGeneX in May. After 2-1/2 months of antibiotics -
according to my wonderful LLMD (Lyme Literate Medical Doctor) the
infection is under control. Good news - right! Problem is now I
still have lots of pain in my TMJ, neck, back, legs, hands -
basically all over. Looks like I may have post Lyme fibromyalgia. I
am exhausted all the time and barely am able to work. If I had been
given 4-6 weeks of antibiotics in January - like I asked for - this
would never have progressed like it did. The medical community needs
to WAKE UP!!! People are suffering out there and need to be
heard!!!! As far as catching it on an airplane - guess I was in the
wrong place at the wrong time!! Talk about bad luck...
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