The Faces Of Lyme

These Stories are REAL people
with Lyme disease & coinfections

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For the non-Lyme literate: Common Lyme abbreviations: abx=antibiotics  dx=diagnosed/diagnosis

NEBRASKA

Linda Morgan - I live in Nebraska and have been misdiagnosed for 3 years with Lyme. Have been told I could not get Lyme where I live. Wake Up Doctors. I pulled this tick out of the back of my head right at home. In 2002, I started having leg pain. Saw a doctor that did X-rays and a neurologist who did nerve testing and also tested for Lyme. All came back negative. In 2003, my feet became painful and started having tingling in my face. I saw a podiatrist for my feet. He made orthotics, did shock wave, sent me to physical therapy, sent me to another foot doctor that did an MRI, and Lyme testing. Everything was negative and said I had plantar facitis. I was lucky enough to use my gut feeing and not have surgery on my feet. By 2005, my feet were really painful, the tingling was down my arm and I was noticing memory loss. A stress test was ordered, but I had no signs of heart conditions. My feet were so painful, I could not stand at my job anymore. I lost my job in 2005. In 2005, my family remembered me getting bit by a tick. My daughter looked up symptoms on the internet. All my symptoms were the same as Lyme disease. We found an LLMD in Missouri. My test came back positive. He started me on orals right away. I was on orals for a year when my hands and feet became numb. Thought I needed a second opinion. Went to a neurologist. He said I did not have Lyme. He said I had inflammation of the nerve. He had me stop my abx and started me on prednisone and methotrexate. That was the wrong thing to do. Both of these meds make your immune system down. My feet became really painful, I was crawling on my hands and knees. I used my gut feeling and got back on abx. My LLMD started me on IV abx. Did IV abx for 11 months, and had to quit because of insurance reasons. Went back on orals and am still on orals as of Feb. 2008. Because of the doctors around here and their inadequacies, my symptoms became chronic. My goal is to get back on my feet. To all you Lyme patients, think positive, and do a lot of praying.

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In the interest of making the stories palatable for everyone, please spell-check your submissions, and substitute a word like "antibiotic(s)" or abx for drug names. This site is foremost about telling the story of our disease and problems with diagnosis, treatment, etc. Please refrain from listing every drug and/or dosage you have been on. We have all been through a unique experience and that is the focus of this page. Thanks for your understanding and cooperation.
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