The Faces Of Lyme

These Stories are REAL people
with Lyme disease & coinfections

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For the non-lyme literate: Common Lyme abbreviations: abx=antibiotics  dx=diagnosed/diagnosis

NEW JERSEY

Maureen Albertson - My story is on my website at www.scottsbt.com/maureen/momisc/lyme/lyme.htm

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Bill Bamert - Started treatments 10 years ago. Had started to try to find out why I was in pain 20 years ago. Been on antibiotics on and off but on for the last 5 years now. Tried a number of alternative treatments. Some have helped but none have been a cure. Just trying to survive until they find a cure or I find one.

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Ralph Russo - I have been suffering from Lyme for the past 3 years with no end in sight. I go to a LLD (Lyme Literate Doctor) and she has helped me a lot. But it (Lyme), doesn't seem like it will ever go away completely.

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Glenroy Barrett Wolfsen - I have had Lyme disease for about six years. I say about six years, because I don’t know when I got bit or where. I was taking care of my wife who was suffering from MS, so I didn’t go very far from home or for too long a time. If I had to guess, I would say it might have been while watching my dogs in a little fenced in area or mowing the lawn, especially behind the pool where there was underbrush and some low hanging tree branches in our yard on Taylor Street in High Bridge. I know the deer were in all our back yards or that street that year, and they are there this year, too. Like many others, I never had the classic “bulls-eye rash” that allows doctors to identify a tick bite as transmitting the Lyme organism. But I was lucky. One day, when going to my pharmacy to get supplies for my wife, I told my pharmacist, Frank Clark, at Grayrock Pharmacy, how I had been feeling. Frank immediately raised his eyebrows at me and without a moment’s hesitation, suggested that I had Lyme and should get to his doctor in as soon as possible for testing. This year Lyme disease is proliferating at a rapid rate. The entire Northeast is affected by this disease, and it is now showing up in states that have rarely seen it before. In fact, there is an unexpected and surprising 30% rise in tick-borne pathogens in Rhode Island this year that indicates some undiscovered factors in the environment that make prediction difficult. The CDC indicates that there were just 17,730 reported cases of Lyme in 2000. But many cases of Lyme are not reported, and the guidelines for reporting are limited in its definition of the disease. Doctors on the front line of fighting the disease say that now it is more likely that yearly cases are as high as 200,000, with as many as 20 million people in this country currently infected. New Jersey is one of the states with the highest rates of infection, with Hunterdon County on the top of the list. How can you protect yourself from Lyme? Use a DEET insect repellant such as Shoo-Bug on your clothes. Tuck pants in socks and wear long sleeves. Stay away from brush, dead leaves and heavy undergrowth. Treat your dogs with Frontline. Check yourself for ticks after hikes or camping but keep in mind that ticks carrying Lyme can be as small as the point of a pencil and very hard to find. If you do find a tick, remove it with tweezers by grasping the jaw area and pulling it straight out. Place the tick or ticks in either a glass jar or resealable sandwich bag, date it, and put it in the freezer. Don’t irritate the attached tick by using alcohol, insecticides, or petroleum jelly, or burning it with a match. The tick can be checked later for infection.

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In the interest of making the stories palatable for everyone, please spell-check your submissions, and substitute a word like "antibiotic(s)" or abx for drug names. This site is foremost about telling the story of our disease and problems with diagnosis, treatment, etc. Please refrain from listing every drug and/or dosage you have been on. We have all been through a unique experience and that is the focus of this page. Thanks for your understanding and cooperation.
NOTE: If you ask for help when writing, please provide your email address so that we can respond!

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Please limit to approximately 500 words or less. E-mail us if your story is longer & I will happily edit it for you.

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